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Why does
(3 comments, 35 views)
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Wednesday, 26 September 2007
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August seem like it was so long ago? I can't believe I haven't blogged since then. Tim has had 3 cycles of chemo since then. Next week he'll be getting his 8th cycle. He also sees the oncologist so hopefully they'll be scheduling another PET scan so we can find out how the 4 cycles since the PET scan in Aug have affected the tumor. If four cycles before shrunk the tumor to 1/2 the size, then 4 more cycles would mean it's completely gone??? That would sure be a nice ring to our ears! This has all been pre surgery, I would like to think they wouldn't have to do surgery, but Tim feels that they will go in and get out all the yucky tissue. I guess that makes sense. Tomorrow he will be picking up his disability papers and taking them to work. They have him on disability until Jan. So hopefully in a week or two he can go on disability.
I talked to Mitch a few weeks ago, right after school started for him. He really is an unhappy camper. His dad didn't get him any school supplies. So I told him I'd do what I can on pay day. I did finally send him a $20 gift card. This past Sunday I asked him if he got his supplies and he said yes. He also stated that he made his dad go with him in case he need $$ for over and above the gift card. I told him good for him. His dad had told him if he doesn't get a PT job by the time he turns 18 he'll be kicked out of the house! Excuse me! He turns 18 in Dec which is the middle of his Senior year! Why add more stress to the kid?? He has to work hard to get decent grades, he's cast in A Chorus Line which opens next week and then has to direct, etc. for his last year of school. I also would like him to take the ACT and SAT tests to help him get into college! I signed him up online, but I feel his Dad should pay since he lives with his dad. Also, money is getting extremely tight for us, as Tim is tired more and working less. FMLA isn't paid time off and he's used up all his other sick, vacation, etc days. So I just keep him in my prayers and I've told him he can come here, he'll get the support he needs. His dad apparently tells everyone that he'll be sending Mitch to college, but I don't think he has a clue how much it costs nowadays. Especially since he never went to college and only got his GED because I pushed him to do it. My ex has bought land in North Central Wisconsin, but can't buy Mitch school supplies or new school clothes! Yet his new woman's four children are all set for school. They all have bedrooms in the house and Mitch is in the basement...no room with a door so no privacy nor any way of keeping the other kids out of his stuff. ugghhh!
Noah's teacher has already called and stated that she thinks Noah is struggling because he's not completing his work. So we have been discussing with Noah that he should consider the self contained class. But he states that he does not want to be in the retarded class. I tell him it's not a retarded class, it's a class for students who have difficulty learning and need extra help. We've gone round and round without much avail Not sure if he's struggling or just being a teen or maybe both! I've emailed the teacher and asked for the IEP to be rescheduled for a couple of weeks later. She agreed, but wants to keep the appt next week so I can talk to his teachers to find out how he's doing in each of their dasses. Today I took him to his primary doc in hopes of getting help. He mentioned that I should probably take him to the neuropsych again. He gave me a group I called and they told me I'd have to pay upfront because Noah's insurance wouldn't be accepted. As I sit here and think about this I'm wondering if they think it is the healthy kids insurance that OH has and not a group ins through work. Maybe I'll have to call them again. Noah got contacts last week and then was quite the monster after that. He has only got them in successfully two times at the eye doctor. But boy it was everyone's fault that he couldn't get them in. Tim wears contacts and was trying to help him. Tim got them in for him the first night, but then when he tried to help the next morning he couldnt' and Noah was very unhappy and quite angry. He didn't like that Tim could get his own in and out so easily and then he was mad because Tim wouldn't put them in for him. We told him to practice over the weekend. He never did and thankfully had another lesson on Mon on how to put them in. We got him a mirror the other night and still no luck getting them in. He's not really practicing either. We told him with practice it will get easier. I no longer have a desire to get them!
I've been having a hard time with my emotions. I am feeling overwhelmed by all that is going on with the loves of my life. They all need me which is great, but hard when I'm not sure how to help them. I try to scrap for therapy and am thinking about taking more walks. I walked in the park on Sunday and it felt good. I took the camera with me and got a few pix. I also found it strange that several had to have their cell phones not only on them but talking on them as they're walking the trails! Oh well I guess they're at least out getting their exercise! Tim blogged recently on his Myspace it was lessons learned from Cancer and Chemo. Sounds like a good layout eh?
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I'm so sorry to hear about your situation. Your plate is full. I do understand my plate is also full. I will send good thoughts your way.
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26-Sep-2007 @ 8:50:52pm
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I am so sorry that you are going through this. I will be thinking of you and praying that those miracles and blessings will continue to come to you every day! All my heartfelt best,
Donna
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11-Oct-2007 @ 2:13:19pm
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Sounds like you have every reason to feel overwhelmed! Taking time for yourself will help! Hang in there!~
Scrapping and walks sounds like very good therapy!
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12-Oct-2007 @ 7:15:51pm
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